The Stolen Colon turns 4

It was 4 years ago today when I started The Stolen Colon. At the time, I was dealing with some really severe Crohn’s disease symptoms and I wasn’t even sure yet what I was going to do as far as surgery or treatment or anything. I say I wasn’t sure, but really, I think I knew surgery was inevitable, but I wasn’t able to fully admit that quite yet. (I mean, why else would I call my blog “The Stolen Colon” if I didn’t know what was coming??) I remember after leaving the consult with my surgeon to set up the surgery, I asked him how soon I needed to let him know if I wanted to cancel so as to not mess up his schedule too much. I knew I wasn’t going to cancel, but knowing that I wasn’t 100% committed just yet gave me a little peace of mind.

I started this blog because I was scared. I was scared of the surgery and what having an ostomy bag would mean for my relationship, my self-esteem, and just my life from that point on. I can’t remember the particular moment that I decided I wanted to start a blog, but I remember searching for people who had been through this surgery before me. I found a few brave individuals out there who were sharing their stories and I will always be grateful for them. But even then, I didn’t find enough. I remember thinking, “If I have to go through all of this, I at least want it to be helpful to someone else.”

the stolen colon blog post ileostomy crohn's disease inflammatory bowel ulcerative colitis stephanie hughes

I felt very alone during this time. I felt like no one could understand what I was going through and the decision I was having to make. So I started writing about it. It was partly to help myself process everything, and partly because I didn’t want other people to feel as alone as I did. I had no idea at the time the world it would open up to me.

My first post was titled: The blog I didn’t want to write. And that still rings true. I never wanted any of this. I never wanted to be “that girl who blogs about her ostomy.” But in doing so, I realized how many other people could understand what I was going through and had dealt with the same uncertainties I had.

You may also notice that I focused on Crohn’s disease in that first post, because that’s what I knew and what I was already comfortable with. I don’t know that I had much to say about ostomies at the time other than I didn’t want one! It’s amazing to think about how much has changed in just 4 years.

By starting The Stolen Colon, I have been given an opportunity to use what I have learned and experienced and help others not feel the same way I did when I was going through with my surgery. I am so happy that there are many more advocates writing and talking today, and there is a much bigger support network for those living with an ostomy. And while I may not have wanted this, I am glad for where starting this blog has led me to today. And I look forward to where it will go from here.

10 thoughts on “The Stolen Colon turns 4

  1. veganostomy

    Happy Blogiversary! I’m so grateful that you started this blog, as it was definitely one of the ones I relied on to get me through the thought the surgery! It’s great to have the opportunity to share this journey with you!

  2. Santiago

    Congratulations! I found your blog incredibly helpful. It made the transition into a new life with a “stolen colon” much easier for me, and I am sure for many others. You’ve done a fantastic job.

  3. Rebecca Denmon

    I understand completely. .I knew no one with crohnsdisease in 1978..and after my surgery , I was told to enjoy life while I could..and have since outlive three drs. And two surgeons. .I would never reverse it..after 37 yrs..I don’t know any other way to live..I’m enjoying life and that’s all that matters

    1. Kathy

      wow -Rebecca that is amazing. I have lived with Crohn’s now for about 30 years. I have not outlived any of my surgeons . . . yet 🙂

      Happy Anniversary, for the blog! I have found your blog wonderful. I am yet facing another hernia repair and open surgery here in the next several months.

  4. Amanda R

    Sorry you had to write it – but so glad you did! It has been an invaluable resource to me over the last few years. As I’ve just made the choice to make my ostomy permanent, it will continue to be on my bookmarks list.

  5. Wendy Hinde

    Hello and thank you for your blog. I’m a bit like you. I got UC back in 1982 ish. Was very ill for a few years, up and down, blood transfusions through my pregnancy etc. then had large bowel removed in 1988. I had a wonderful surgeon. I had a J.Pouch formed and temporary ileostomy whilst it healed for 4 months. ( I hated it with a passion) it leaked constantly, I was so sore and my skin raw.
    Then seemed to be ok for a few years but was diagnosed with Crohn’s Disease in 2003. Had flare ups et since then, controlled with a cocktail of drugs. I’ve just started dealing with FISTULAS now. I’ve had 3 surgeries SETON Drains and awaiting 4th surgery LIFT PROCEDURE ON 3/5/17. I have anaemia too. On AZATHIOPRINE AND HUMIRA lots of loperamide and Tramadol. I’m 58 now, just emigrated to NZ 3 years ago to be near daughter and three grandchildren and I work three days a week in a high school with SEN kids. They’re looking after me well in NZ.

  6. Dawn

    So I changed my bag today and forgot to apply my skin barrier wipe after applying the nystop powder and ostomy powder….is there going to be an issue with the bag staying on or is it more of an issue with the powder not being effective?¿


Sit down, stay a while. I'd love to hear from you.