Category Archives: Motherhood

How to dress when pregnant with an ostomy

I have done a video before about what to wear with an ostomy, but now that I am almost 9-months pregnant, I wanted to talk about how to dress when your stomach becomes more of a focal point. It does become a bit more complicated to attempt to hide your ostomy bag during this time, but I don’t think that means you still can’t dress the way you want. I think it is much more about what you are comfortable with and making your decisions based on that. Here are some of the clothing options I have chosen throughout my pregnancy, but I’d love to know if you have found some other options that I do not cover here!

SaveSave

The second time around

And how I plan to better manage my pregnancy with an ostomy

Here we go again! We are excited to announce that we are expecting our second child this July! My husband and Waylon and I are so excited to grow our little family. (You can see W showing you where the baby is!)

new baby pregnancy stolen colon ostomy ileostomy colostomy urostomy ibd inflammatory bowel disease crohn's ulcerative colitis

It’s amazing the difference already between the first pregnancy and the second in as much attention you devote to it. With my first, it was pretty much all I thought about, all of the time. This time around, between chasing after a toddler, finishing up my master’s degree and just everything else I have to accomplish in a day, I feel that I’ve had very little time to really just think about it and what all it means. I, myself, am a second child and I suddenly have a whole new appreciation for what that means and my place in my family…

For those of you who followed along with my first pregnancy, you know that I had complications in the end—specifically an intestinal blockage—that led to a series of hospitalizations, a dreaded NG tube, and ultimately to my induction just before 36 weeks when I gave birth to my son. So obviously, we had some things to consider when we discussed the idea of having another child.

So how do I plan to make this pregnancy different from the first? Well, in all honesty, I’m not sure that I can, but I sure as hell am going to try. While I was being cautious with the foods I ate later in my first pregnancy, I realize now that I was not being cautious enough. There were a couple of times that I ate things that were probably a little too risky. Knowing now what the consequences of that can be, I will be sure to be more vigilant in making sure that I avoid problem foods and make smarter decisions. I have already noticed a time or two that I have felt a little blocked up, although nothing that some extra hydration and careful eating couldn’t fix, but it does make me wary about how the next few months are going to go.

I have bandied the idea of going on a mostly liquid diet during the final weeks, but the reality of living for 10+ weeks on a liquid diet when you’re pregnant would not be an easy task. At the minimum, I will be employing a some sort of low residue diet during that time, in hopes that I do not run into the same issues I experienced last time.

But other than some extra caution and some food avoidance, I can’t say that I have done anything differently this time than I did the first time. I have been trying my best to stay hydrated, but that’s a constant struggle, pregnancy or no pregnancy. I am prepared with some larger sized wafers for once my stoma grows, which I expect it will again, and potentially prolapses.

Even with the complications last time, I am still not considered high risk by my obstetrician. I do know they’ll be keeping a slightly closer eye on me, especially as I progress further along in the pregnancy, but the ostomy really doesn’t change any of my treatment, unless there is another complication.

For now, I am focused on trying to eat healthy, but smart from an ostomy stand-point, drink lots and lots of water, and hopefully enjoy a complication-free pregnancy.

(You can read some about my previous pregnancy, as well: All about pregnancy with an ostomy.)

Thoughts on motherhood & ostomies

Being a mother, in many ways, is just how I imagined it would be. It’s fun, challenging, exhausting, full of love and snuggles. But I don’t think I ever could have imagined how strongly each of those feelings and emotions would impact me. It’s more fun, more challenging, more exhausting than I ever could have anticipated.

mothers day ostomy stolen colon stephanie hughes crohn's disease inflammatory bowel disease

My son is coming up on turning 11 months old this week. As I have gotten to know him over those months, I have learned a lot, both about myself and about parenthood in general. I have found that I can’t take my eyes off of him for more than a few seconds or he will make a break for the stairs. I have learned that no matter how good of a job I think I do at keeping stuff out of his reach, he will always find the one thing he shouldn’t be playing with. I have learned that my son’s laugh is the most incredible sound in the world. I have realized where I’m willing to take risks and where I am not. When previously I would have stepped on the gas to catch a yellow light, I now slow down and wait. Making that light may be worth the risk to my life, but it’s not worth the risk to his. It’s interesting to realize how differently you value and treat your own life as compared to your child’s.

Having a child certainly makes you look at the world differently. It’s as if everything you see is now filtered through a different lens. You think about what’s best for them, and how you can help them learn and grow. It also makes you think more often about the truly important things in life.

This past week, my son and I both came down with a cold. Nothing major, but just enough to where you feel pretty awful and you just want to sleep for a while. Well, as you parents know, kids don’t believe in taking a day to rest. I started feeling poorly after he was doing a lot better, so all he wanted to do was play and explore, while all I wanted to do was to take a nap. As he was staring at me, and starting to cry because I didn’t want to play, I thought about what it would be like if I was feeling run like this down all of the time. Those few days were difficult, but they were nothing compared to what so many individuals with IBD live through each and every day. It’s what I lived through every day for a very long time. It broke my heart to think of what it would be like if I had never had my surgery.

My son makes me thankful for my ostomy every day. It has allowed me to chase him around on the floor without feeling too exhausted. I can now break away for a quick moment to empty my bag, rather than spending a long time in the bathroom. I have the strength to pick him up and carry him around with me during the day.

On my first Mother’s day after his birth, I stop to think about what it means to be a mother. It’s about teaching your child how to navigate this world and to be a good and kind person. You show them how to love and be respectful of others. You give them the tools to make something of themselves and to chase after their dreams. But more than almost anything, it’s about being there for your child. And I am so thankful that my ostomy has allowed me to be there for mine.

Adventures in mommyhood (with an ostomy)

I have a hard time believing, at the moment, that my tiny little baby is going to be one-year old in just two months. Everyone always told me how quickly times goes by, but I am still shocked at how quickly it does. This week, we were blessed with the arrival of my first nephew, and when we went to meet him at the hospital, I was taken aback by how tiny he was and how I could hardly imagine my son being that size just 10 months ago.

These months have been a growing time for me, as well, as I learn what it means to be a mom. And while I know I having an ostomy has no bearing on the kind of mom I am, I do see some areas that are a little different for me. So I thought I’d start a new series. An OstoMOMmy series, if you will.

Ostomommy-Logo

I will plan to talk about any instances I find in my life as a mom that have been impacted by my ostomy and consider ways to deal with it or things I have learned from it. And I’d like your help, as well. In a series like this, I want to make sure I am writing about things that actually impact other people’s lives. So I’d like to know about your questions or ideas for topics.

What questions do you have about being a parent with an ostomy? Are there certain activities that concern you about raising a child or that you’ve already experienced? Are there things that you think will be different as a parent with an ostomy? Are there certain scenarios where you, as a parent, have had a different perspective because of your ostomy? What other parenting topics would you be interested in hearing more about?

I have a couple of topics in mind, but I figure this will be a series that I will write about as it happens, whether it happens often or only sporadically. Please comment below or on my Facebook page with your questions or topic ideas!