Category Archives: Personal

The Stolen Colon turns 4

It was 4 years ago today when I started The Stolen Colon. At the time, I was dealing with some really severe Crohn’s disease symptoms and I wasn’t even sure yet what I was going to do as far as surgery or treatment or anything. I say I wasn’t sure, but really, I think I knew surgery was inevitable, but I wasn’t able to fully admit that quite yet. (I mean, why else would I call my blog “The Stolen Colon” if I didn’t know what was coming??) I remember after leaving the consult with my surgeon to set up the surgery, I asked him how soon I needed to let him know if I wanted to cancel so as to not mess up his schedule too much. I knew I wasn’t going to cancel, but knowing that I wasn’t 100% committed just yet gave me a little peace of mind.

I started this blog because I was scared. I was scared of the surgery and what having an ostomy bag would mean for my relationship, my self-esteem, and just my life from that point on. I can’t remember the particular moment that I decided I wanted to start a blog, but I remember searching for people who had been through this surgery before me. I found a few brave individuals out there who were sharing their stories and I will always be grateful for them. But even then, I didn’t find enough. I remember thinking, “If I have to go through all of this, I at least want it to be helpful to someone else.”

the stolen colon blog post ileostomy crohn's disease inflammatory bowel ulcerative colitis stephanie hughes

I felt very alone during this time. I felt like no one could understand what I was going through and the decision I was having to make. So I started writing about it. It was partly to help myself process everything, and partly because I didn’t want other people to feel as alone as I did. I had no idea at the time the world it would open up to me.

My first post was titled: The blog I didn’t want to write. And that still rings true. I never wanted any of this. I never wanted to be “that girl who blogs about her ostomy.” But in doing so, I realized how many other people could understand what I was going through and had dealt with the same uncertainties I had.

You may also notice that I focused on Crohn’s disease in that first post, because that’s what I knew and what I was already comfortable with. I don’t know that I had much to say about ostomies at the time other than I didn’t want one! It’s amazing to think about how much has changed in just 4 years.

By starting The Stolen Colon, I have been given an opportunity to use what I have learned and experienced and help others not feel the same way I did when I was going through with my surgery. I am so happy that there are many more advocates writing and talking today, and there is a much bigger support network for those living with an ostomy. And while I may not have wanted this, I am glad for where starting this blog has led me to today. And I look forward to where it will go from here.

Pregnancy with IBD Twitter chat

I know a lot of you followed along with my pregnancy with having an ostomy and IBD, so I am excited to take part in a Twitter chat discussing pregnancy, birth and parenthood while living with IBD as a part of the IBD Social Circle. I will be co-hosting with Amber Tresca of About.com, so we will be able to discuss our personal experiences with our families. Dr. Loftus of Mayo Clinic will be joining, as well, to give us the more scientific and medical perspective.

The Twitter chat will take place next Wednesday, March 9, at 12:00 p.m. EST. You can follow along with the hashtag #IBDSC and by following our Twitter accounts: @smlhughes@AboutIBD / @EdwardLoftus2.

I hope you’ll join us for this chat! We’d love to hear about your experiences and to answer some of your questions, as well.

IBD Social-Circle-TwitterChat 1 Final

**Janssen Biotech Inc. is paying for my time to advise on this chat. All thoughts and opinions expressed will be my own.

World Ostomy Day Twitter chat

I have loved seeing all of the ostomy love this week! It’s been great being a part of the sharing of information and spreading of awareness. And it’s not over yet!

This Friday, October 2, I have the awesome opportunity to co-host a Twitter chat with the CCFA as a precursor to World Ostomy Day. We are going to have a great panel of participants, including a colorectal surgeon, a dietician and representatives from the United Ostomy Association and the Crohn’s and Colitis Foundation.

World Ostomy Day Twitter Chat
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Stolen Colon maternity leave

I wanted to take a moment to thank everyone for their support during the past 4 months. Your prayers and thoughts were so appreciated when I spent nearly a month in the hospital, and your congratulations after the birth of my son were so welcome. I also want to thank you for being patient with me during this time. I really needed these 12 weeks to spend time with my son and to fully recover and get back on my feet. I apologize if I have not responded quickly (or at all) to your emails or messages and am doing my best to get caught up. I hope to get things rolling again and be better at responding to comments and emails. I am still learning what it means to be a mom and juggling home-life, work-life and social-life.

I have a lot to get caught up on, so if you have not heard from me and would still like to chat, feel free to send me another message. Again, I appreciate you all so much and look forward to sharing some of my new adventures of being a mom with an osmotic & a chronic illness.

Thank you!

Stephanie sig