Category Archives: Pregnancy

The second time around

And how I plan to better manage my pregnancy with an ostomy

Here we go again! We are excited to announce that we are expecting our second child this July! My husband and Waylon and I are so excited to grow our little family. (You can see W showing you where the baby is!)

new baby pregnancy stolen colon ostomy ileostomy colostomy urostomy ibd inflammatory bowel disease crohn's ulcerative colitis

It’s amazing the difference already between the first pregnancy and the second in as much attention you devote to it. With my first, it was pretty much all I thought about, all of the time. This time around, between chasing after a toddler, finishing up my master’s degree and just everything else I have to accomplish in a day, I feel that I’ve had very little time to really just think about it and what all it means. I, myself, am a second child and I suddenly have a whole new appreciation for what that means and my place in my family…

For those of you who followed along with my first pregnancy, you know that I had complications in the end—specifically an intestinal blockage—that led to a series of hospitalizations, a dreaded NG tube, and ultimately to my induction just before 36 weeks when I gave birth to my son. So obviously, we had some things to consider when we discussed the idea of having another child.

So how do I plan to make this pregnancy different from the first? Well, in all honesty, I’m not sure that I can, but I sure as hell am going to try. While I was being cautious with the foods I ate later in my first pregnancy, I realize now that I was not being cautious enough. There were a couple of times that I ate things that were probably a little too risky. Knowing now what the consequences of that can be, I will be sure to be more vigilant in making sure that I avoid problem foods and make smarter decisions. I have already noticed a time or two that I have felt a little blocked up, although nothing that some extra hydration and careful eating couldn’t fix, but it does make me wary about how the next few months are going to go.

I have bandied the idea of going on a mostly liquid diet during the final weeks, but the reality of living for 10+ weeks on a liquid diet when you’re pregnant would not be an easy task. At the minimum, I will be employing a some sort of low residue diet during that time, in hopes that I do not run into the same issues I experienced last time.

But other than some extra caution and some food avoidance, I can’t say that I have done anything differently this time than I did the first time. I have been trying my best to stay hydrated, but that’s a constant struggle, pregnancy or no pregnancy. I am prepared with some larger sized wafers for once my stoma grows, which I expect it will again, and potentially prolapses.

Even with the complications last time, I am still not considered high risk by my obstetrician. I do know they’ll be keeping a slightly closer eye on me, especially as I progress further along in the pregnancy, but the ostomy really doesn’t change any of my treatment, unless there is another complication.

For now, I am focused on trying to eat healthy, but smart from an ostomy stand-point, drink lots and lots of water, and hopefully enjoy a complication-free pregnancy.

(You can read some about my previous pregnancy, as well: All about pregnancy with an ostomy.)

A new meaning for World IBD Day

I realize that today is World IBD day, but that is no longer the significance that this day holds for me. It was one year ago today that I was first admitted to the hospital with an intestinal blockage during the third trimester of my pregnancy. It was the beginning of the end of my pregnancy.

world ibd day inflammatory bowel disease crohn's ulcerative colitis ileostomy stephanie hughes anniversary pregnancyTwo days before, I had sent out a tweet about feeling a little blocked up. Honestly, at the time I didn’t think it was that big of a deal. It felt like the number of other times I had a mild blockage that would clear on its own if I drank a lot of water and stayed away from fibrous foods. Even when I went to the ER last May, I really only went because I was pregnant. If I hadn’t been worried about my son, I seriously doubt I would have gone to the hospital. It was more about being extra cautious than actually thinking there was a problem. After about a day in the hospital, I already was feeling better. I remember my surgeon coming in to talk to me and telling him I felt great and didn’t see a reason I needed to stay any longer.

this is ibd postLittle did I know how much worse it would get over the coming days and weeks. Two days after being released from the hospital, I was in tears over the amount of pain I was in and would end up taking myself back to the hospital in the morning. And three weeks after that, my son would be here.

For me now, this day is a reminder of how much IBD can impact your life and the lives of the people around you. My pregnancy and my son’s birth did not go as I had planned. Thankfully, everything turned out well in the end, with a healthy baby and a healthy mom, but it could have gone another direction. I know if we decide to have more kids, I will go about things differently in the hopes of preventing another blockage. But truth is… with a disease like IBD, you never know what’s going to happen. And that’s why awareness is so important. So people have the information they need in order to make the best decisions. So others understand, even just a little bit, what it’s like to live with an unpredictable disease. And so one day a cure can save others from spending World IBD Day in the emergency room.

Pregnancy with IBD Twitter chat

I know a lot of you followed along with my pregnancy with having an ostomy and IBD, so I am excited to take part in a Twitter chat discussing pregnancy, birth and parenthood while living with IBD as a part of the IBD Social Circle. I will be co-hosting with Amber Tresca of About.com, so we will be able to discuss our personal experiences with our families. Dr. Loftus of Mayo Clinic will be joining, as well, to give us the more scientific and medical perspective.

The Twitter chat will take place next Wednesday, March 9, at 12:00 p.m. EST. You can follow along with the hashtag #IBDSC and by following our Twitter accounts: @smlhughes@AboutIBD / @EdwardLoftus2.

I hope you’ll join us for this chat! We’d love to hear about your experiences and to answer some of your questions, as well.

IBD Social-Circle-TwitterChat 1 Final

**Janssen Biotech Inc. is paying for my time to advise on this chat. All thoughts and opinions expressed will be my own.

2015 at The Stolen Colon

I’m always amazed at the end of each year as I look back and realize all that happened in the past 365 days. Obviously 2015 held even bigger changes than previous years as I announced  my pregnancy at the beginning of the year and gave birth (amid some ostomy drama) to my son. And if that wasn’t enough, in my personal life, we settled into our new home that we moved into just before the beginning of the year, I decided to leave my full-time job in favor of working from home and getting to spend time with my kid, and celebrated 5 years of marriage to my husband.

I thought I’d take this chance to highlight some of my favorite posts from the past year. I actually had a hard time narrowing this down because there were a lot of posts that really meant a lot to me this year. It’s pretty pregnancy / baby dominated, but I’m OK with that!

2015 stolen colon year in review ostomy baby crohn's disease ileostomy ibd inflammatory bowel disease
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