Inflammatory Bowel Disease: by the numbers

IBD Awareness Week

ibd inflammatory bowel disease awareness week crohn's disease ulcerative colitis ostomy stephanie hughes stolen colon blog

1,400,000: Americans living with IBD

70,000: New cases of IBD diagnosed in the U.S. each year

50,000: Children in the U.S. diagnosed with IBD

1932: Year Dr. Burrill B. Crohn first described the disease that would become known as Crohn’s disease

5: Types of Crohn’s disease (Ileocolitis, Ileitis, Gastroduodenal Crohn’s disease, Jejunoileitis, Crohn’s colitis – Here’s some more info on this)

70%: People with Crohn’s disease who will eventually require surgery

20%: People with ulcerative colitis who will also have a close relative with the disease

750,000: Annual physician visits by IBD patients

100,000: Hospitalizations every year of IBD patients

119,000: Patients on disability a year due to IBD

30%: Patients who have surgery for Crohn’s disease and will experience recurrence of their symptoms within three years (increases to 60% within 10 years)

90%: Ulcerative colitis patients who will have at least one relapse of active symptoms within 25 years of diagnosis

50%: Crohn’s disease patients who will experience complications within digestive tract (i.e. stricture) within 20 years of diagnosis

3,100,000: Approximate work-loss days per year in the U.S. due to IBD

$2,200,000,000: Annual direct / indirect cost of IBD in the U.S.

$8,265: Mean annual direct costs for Crohn’s disease per patient

$5,066: Mean annual direct costs for ulcerative colitis per patient

0: Cures for Crohn’s disease and ulcerative colitis*

*I realize that some specialists will say that removing the colon is a cure for ulcerative colitis, but I don’t think any disease that often still manifests in other ways after an organ has been removed should be considered cured. Just my opinion.

3 thoughts on “Inflammatory Bowel Disease: by the numbers

  1. LouiseUsher

    Thank you for sharing these facts. I am an in remission crohns patient trying to help others by adjusting diet on my other blog. I’m going to have a read of your stories. Do you find writing is the best ‘job’ to fit in with your crohns? I’m building mine day by day as the fatigue days are getting tough!

    Nice to meet you x

  2. Lori

    Thank you for doing so much to raise awareness of IBD! When I had my first episode at age 8 (33 years ago!) the doctors had no idea what was wrong. So few people had the disease and it wasn’t discussed. Whenever I could during my college years I’ve given presentations about the disease and what I’ve been through. It may seem like not much has happened in the way of treatment and cure, but my nephew who has Crohn’s has never been hospitalized or been through what I went through thanks to the new medicines. I don’t talk as much about what I’ve been through, but I’m realizing I should.

    1. Stephanie Hughes Post author

      It is amazing to think how drastically things have changed in the IBD world in the past few years. It’s good seeing that Crohn’s disease and ulcerative colitis are becoming better known terms. I think people being willing to speak up about it is making a lot of difference. And what’s even better, is that I have found that talking about it not only helps spread awareness, but helps me feel better, too!


Sit down, stay a while. I'd love to hear from you.