Post-Ostomy Day hangover

I’ve been spending the past few days in upstate New York. My husband’s family lives up this way, so we’ve been enjoying some time with them and celebrating at his cousin’s wedding. It has been a wonderful time, but unfortunately, it coincided with a very important day for me: World Ostomy Day.

World Ostomy Day is meant to be a specific day where ostomates around the world come together to spread awareness and to show that their ostomies are not slowing them down. As an ostomy blogger, I kind of feel that every day is “Ostomy Day,” but it is important to have some time set aside to talk about it as a larger group. And I am still reeling from all of the awesomeness I saw happening yesterday and the stories that were being shared.

World Ostomy Day WannaWearOne 5k stephanie hughes out of the bag colostomy ileostomy crohn's disease ulcerative colitis inflammatory bowel disease ibd ostomy blog stolen colon top 10 reasons to have an ostomy ileostomy colostomy urostomyWhile I’m so glad we got to be a part of this wedding and I wouldn’t have changed anything about this weekend, it does make me sad that I was not able to participate in the day as much as I would have liked. I am disappointed that I did not get to run in the first WannaWearOne Ostomy AWEARness 5K in person, even though I still ran a 5K yesterday morning as part of the virtual run.

And I did keep up with the things that were going on for Ostomy Day, even if just on my phone between the ceremony and reception. And as I sit here on the back porch in the crisp fall, New York air, looking over one of the most beautiful views, I think about how thankful I am. I think about how thankful I am that I am not alone in this. That there are others binghamton ny fallout there who have dealt with some of the same things I have in the past, who live with some of the same struggles I do now, and who have found a new life living with an ostomy. I feel like that’s the real point of World Ostomy Day: to show others that an ostomy is not a death sentence.

I am so proud to be a part of such a strong group of people who are living life despite being dealt a pretty crappy hand and who are making the best of a difficult situation and who are learning to not be ashamed of being different, but rather to embrace the freedom they now have. These are people who inspire me and continue to push me forward. They give me strength to sit here and write and to share my story and to never, ever apologize for who I am or whatever may be hanging off of my stomach.

And I pray that this continues long past World Ostomy Day. I pray that people continue to tell their stories and not let having an ostomy hold them back from anything in this life. I was talking with my friend the other day and trying to brainstorm some good ostomy hashtags and she came up with one I love: #OstoMYstory. So I asked her if I could steal it!

This blog is where I tell my story, but I want to encourage you to not be afraid to tell yours, too. Be proud of what you have come through and the things you have fought against. Show the world that you can still live a fabulous, beautiful life with an ostomy! Happy Day-after World Ostomy Day!

6 thoughts on “Post-Ostomy Day hangover

  1. Lynn N.

    I am just two months post op but wanted to participate in Ostomy Awareness Day. I posted a pic of me and my stoma, Lola, on various Facebook groups…IBD, Great American Bowel Movement, Colostomy Association…and finally got the guts to post it on my personal page as well. Now all my FB friends know that I’m a proud ostomate. And that having an ileostomy has made me stronger and bolder, if that’s possible! Thanks for sharing your story and allowing me to share mine.

    1. Stephanie Hughes Post author

      Lynn, that is so awesome! I’m glad you’ve felt free to share your story. I know it will inspire many. Thanks for sharing!

  2. avital

    Hello Stephanie,
    I’ve read your posts and became a follower! You are a breath of fresh air to so many of us!! Your posts are incredibly helpful and full of information, you tell it like it is and that’s so important! I’m undergoing a total ileostomy in 2 weeks due to UC for 17 years, I’ve been educating myself on what’s coming preoperative and post, stoma care, nutrition etc. Many many ostomytes are open about all that, it’s priceless for the ones that coming into it.
    Want to thank you for your time and effort to educate and share your knowledge! !
    Feel well and keep up the good work!!

  3. Lindsey B.

    A YEAR AGO this week is when my body started to fail me, this was the start of hospital stays and IVs, this is when my life would take an unexpected turn, this is when I started to see my true inner strength, and this is when I started to fight for my life.

    October 27th, 2014 – Is when I woke up with an ostomy, at 27 I thought my life was over. Now, I see this has been a huge blessing it has given me my life back and has freed me from the pain of UC. December 2015, I will be going under the knife again to make this a permanent part of my body and life.

    I am so lucky to get to spend Oct. 3rd on a family vacation!

  4. Chris

    My son in law has stage 4 colon cancer and will undergo a colectomy. Soon. My daughter is trying to figure out what she should have available at the house when he gets back home. Things like waterproof bed coverings, bandages, etc… Can you help with these kinds of details?


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