Tag Archives: goals

There’s a new girl in town

Everything anyone ever told me about having two kids is true. The past few weeks since the birth of my daughter have been exhausting. They’ve been amazing, but exhausting, too. I have been wanting to share the news for a while, but had a difficult time finding the time (or energy) to sit down and actually do it. So I am woefully behind on this, but here goes…

chandler birth labor delivery mom baby ostomy blockage obstruction pregnancy ibd crohn's disease ileostomy stolen colon stephanie hughesOn July 11, we welcomed a wonderful new addition to our family: Chandler Marie. She was born at 38 weeks and 5 days gestation, nearly a full three weeks further along than my son. Her birth was the result of my body naturally going into labor, and not due to an induction because of a persistent bowel blockage, as I dealt with last time. (You can read the entire story of my first delivery here.)

The abbreviated version of this story is that I started having mild contractions the evening before around 10:00 p.m. I went to sleep and they woke me up a few hours later and we ventured over to the hospital around 3:00 a.m. to find that I was already 5 cm dilated. After 8 hours of labor, I was no further dilated, but then BAM, in the next hour and a half I went from 5 to 10 cm dilated. I started pushing at 1:01 p.m. and she officially entered the world at 1:07 p.m. (Trust me, it was not the same story with my first.) She weighed 7 lbs. 9 oz. at birth.

There were no complications with my ostomy during the actual labor and delivery process. It was essentially a non-factor during that time. And thankfully, as was the case with my first, my body seemed to get back to normal as soon as she was born. I was able to start eating the same foods I had prior to pregnancy with no blockage issues! It’s taken a few weeks, but my stoma is getting back to normal. It was still fairly large for the first couple of weeks and I was concerned that it might not return to its normal size, but at 9 weeks postpartum it seems to be pretty close to the size it was originally and not prolapsed like it had been during my pregnancy.

chandler birth labor delivery mom baby ostomy blockage obstruction pregnancy ibd crohn's disease ileostomy stolen colon stephanie hughesChandler has been doing great, as well. We were able to come home just 24 hours after her birth. She’s been growing like a champ and getting more personality by the day.

I’ll be sure to share a little more about the final weeks of my pregnancy with an ostomy and attempting to avoid another blockage but know I am so thankful that I was able to avoid any further complications with my ostomy and any more hospitalizations. I wanted so much to be able to deliver as a result of spontaneous labor and I was able to achieve that goal, but it definitely wasn’t easy.

These past few weeks have been a big adjustment as I’m now living with a high-energy 2-year-old and an infant. I hope as we get more settled that I can get back into a good routine of sharing information and keeping in contact with all of you. I apologize to anyone that I have not responded to recently and I hope to be in touch soon. Thank you for all of your support and well wishes!

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Will run for ostomy awareness

In just a few short weeks, World Ostomy Day 2016 will be here. And yes, it’s a day for raising awareness, but I think I have found a better way to celebrate the day… And that’s by doing things that I wouldn’t have been able to do prior to getting an ostomy. For me, that has been running.

will run for ostomy awareness 5k resilience

For the past 2 years, I have taken part in the WannaWearOne Ostomy 5K. The first year I did it from out of town as a part of the virtual race and last year I was able to compete in a local race in Durham, NC. (But that isn’t the only local race! Keep reading for more info!) ostomy run race resilience wannawearone This year, the race is taking on a different name: Run for Resilience Ostomy 5K. And I think that’s a very fitting title, because it’s about showing that having an ostomy does not have to stop you from doing whatever you want to do.

Last year’s race was not an easy one for me. I was about 3 months postpartum and I hadn’t been running in a very long time. But it was important to me to take part in this race and to do what I could to show myself and others that having an ostomy was not going to hold me back. I figured I was probably the last person in the race, but amazingly I was not, and I actually ended up winning 3rd place among ostomates in the race! (Check out my LIVE IN ACTION video below!)

So I encourage you this World Ostomy Day to get involved. The Run for Resilience is a great opportunity to do so. (And here’s a Where’s Waldo? opportunity for you: Can you spot me on the Registration page??) The run features races in 5 physical locations–in both the US & the UK–and a virtual race available for everybody to take part. Basically, the virtual race allows you to run wherever you are, while still being a part of the event and the awareness raised. Just be sure to post pictures using #IAmResilient! The races take place on different days during October, so check out the website for what’s happening near you.

Even if running isn’t your thing, find a way to do something. Think about things you couldn’t have done before your surgery. Maybe it is eating a certain food or sitting through a whole movie or going hiking. Find whatever it is and do it! Show yourself and the world that you are resilient and an ostomy is not going to hold you back!

ostomy run race resilience wannawearone

 

My son does not nap…

And that’s a big reason that I have not been around for a while. I apologize that I sort of fell off the face of the world for a while there. If I’m being totally honest… I think I was kind of hiding.

w no napIt started in October, when my son decided he no longer liked sleeping. (The 4-month sleep regression is real!) I was exhausted in every way possible. Thankfully, he has started sleeping through the night, but he still refuses to nap more than 30 minutes at a time and usually only twice, maybe three times a day. I left my full-time job to stay home with him, but I do have a part-time, work-from-home job, so any time I got him to go down for a nap, I’ve felt like I have to spend that time working. And even if I wasn’t working, there were a million things around the house to do. And then I sometimes just needed a little time for myself. I don’t like that it happened, but my blog kept getting pushed further down the list.
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Run for ostomies, raise awareness at WannaWearOne Ostomy 5K

We are less than a month away from World Ostomy Day and with that comes the 2nd Annual WannaWearOne Ostomy AWEARness 5K! And the original race started right here in my backyard in Durham, NC, but this year there are 2 more events in Kingsport, TN, and Portland, OR.

wwo2015

This is truly a one-of-a-kind event that is meant to raise awareness for ostomies. It started as a joint event between two of the hospitals in the area where people tried wearing an ostomy bag to learn a little more about what it is like to have one. It has since morphed into a race that raises money that goes towards the UOAA and ostomy awareness and support.

Keeping with that theme, one of the unique parts of this race is that all race gear bags come with an ostomy bag. Those without ostomies are encouraged to wear the bag during the race and even have the option of filling the bag with items like applesauce and pudding to give participants a small glimpse into what it feels like to wear an ostomy bag.

wannawearone ostomy awearness 5k run race ileostomy colostomy urostomy stolen colon ibd World Ostomy Day and the race take place on Saturday, October 3. If you are in one of these areas or able to make the trip, you should definitely check it out! But even if you aren’t close or able to travel, you can still be a part of the event by doing the virtual race. I actually did this last year since I happened to be traveling on World Ostomy Day. You simply run on your own, but can still raise awareness, fundraise and support the cause.

Here is all the information you need to register. Whether you are able to attend or do the virtual race, you can still be a part of the event. Even if you are unable to run, please consider donating towards the goal of spreading awareness and providing help for those living with an ostomy.

I will be out at the Durham event this year and little Waylon will be supporting the cause, too! We’d love to get to see you. If you have any questions, you can reach out to the coordinators through the website, or feel free to email me and I’ll help however I can. Or you can email me to simply let me know if you’re coming! I hope I get the chance to meet some of you.

2015 WannaWearOne Ostomy AWEARness 5K