Tag Archives: parenthood

Thoughts on motherhood & ostomies

Being a mother, in many ways, is just how I imagined it would be. It’s fun, challenging, exhausting, full of love and snuggles. But I don’t think I ever could have imagined how strongly each of those feelings and emotions would impact me. It’s more fun, more challenging, more exhausting than I ever could have anticipated.

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My son is coming up on turning 11 months old this week. As I have gotten to know him over those months, I have learned a lot, both about myself and about parenthood in general. I have found that I can’t take my eyes off of him for more than a few seconds or he will make a break for the stairs. I have learned that no matter how good of a job I think I do at keeping stuff out of his reach, he will always find the one thing he shouldn’t be playing with. I have learned that my son’s laugh is the most incredible sound in the world. I have realized where I’m willing to take risks and where I am not. When previously I would have stepped on the gas to catch a yellow light, I now slow down and wait. Making that light may be worth the risk to my life, but it’s not worth the risk to his. It’s interesting to realize how differently you value and treat your own life as compared to your child’s.

Having a child certainly makes you look at the world differently. It’s as if everything you see is now filtered through a different lens. You think about what’s best for them, and how you can help them learn and grow. It also makes you think more often about the truly important things in life.

This past week, my son and I both came down with a cold. Nothing major, but just enough to where you feel pretty awful and you just want to sleep for a while. Well, as you parents know, kids don’t believe in taking a day to rest. I started feeling poorly after he was doing a lot better, so all he wanted to do was play and explore, while all I wanted to do was to take a nap. As he was staring at me, and starting to cry because I didn’t want to play, I thought about what it would be like if I was feeling run like this down all of the time. Those few days were difficult, but they were nothing compared to what so many individuals with IBD live through each and every day. It’s what I lived through every day for a very long time. It broke my heart to think of what it would be like if I had never had my surgery.

My son makes me thankful for my ostomy every day. It has allowed me to chase him around on the floor without feeling too exhausted. I can now break away for a quick moment to empty my bag, rather than spending a long time in the bathroom. I have the strength to pick him up and carry him around with me during the day.

On my first Mother’s day after his birth, I stop to think about what it means to be a mother. It’s about teaching your child how to navigate this world and to be a good and kind person. You show them how to love and be respectful of others. You give them the tools to make something of themselves and to chase after their dreams. But more than almost anything, it’s about being there for your child. And I am so thankful that my ostomy has allowed me to be there for mine.

Adventures in mommyhood (with an ostomy)

I have a hard time believing, at the moment, that my tiny little baby is going to be one-year old in just two months. Everyone always told me how quickly times goes by, but I am still shocked at how quickly it does. This week, we were blessed with the arrival of my first nephew, and when we went to meet him at the hospital, I was taken aback by how tiny he was and how I could hardly imagine my son being that size just 10 months ago.

These months have been a growing time for me, as well, as I learn what it means to be a mom. And while I know I having an ostomy has no bearing on the kind of mom I am, I do see some areas that are a little different for me. So I thought I’d start a new series. An OstoMOMmy series, if you will.

Ostomommy-Logo

I will plan to talk about any instances I find in my life as a mom that have been impacted by my ostomy and consider ways to deal with it or things I have learned from it. And I’d like your help, as well. In a series like this, I want to make sure I am writing about things that actually impact other people’s lives. So I’d like to know about your questions or ideas for topics.

What questions do you have about being a parent with an ostomy? Are there certain activities that concern you about raising a child or that you’ve already experienced? Are there things that you think will be different as a parent with an ostomy? Are there certain scenarios where you, as a parent, have had a different perspective because of your ostomy? What other parenting topics would you be interested in hearing more about?

I have a couple of topics in mind, but I figure this will be a series that I will write about as it happens, whether it happens often or only sporadically. Please comment below or on my Facebook page with your questions or topic ideas!

Pregnancy with IBD Twitter chat

I know a lot of you followed along with my pregnancy with having an ostomy and IBD, so I am excited to take part in a Twitter chat discussing pregnancy, birth and parenthood while living with IBD as a part of the IBD Social Circle. I will be co-hosting with Amber Tresca of About.com, so we will be able to discuss our personal experiences with our families. Dr. Loftus of Mayo Clinic will be joining, as well, to give us the more scientific and medical perspective.

The Twitter chat will take place next Wednesday, March 9, at 12:00 p.m. EST. You can follow along with the hashtag #IBDSC and by following our Twitter accounts: @smlhughes@AboutIBD / @EdwardLoftus2.

I hope you’ll join us for this chat! We’d love to hear about your experiences and to answer some of your questions, as well.

IBD Social-Circle-TwitterChat 1 Final

**Janssen Biotech Inc. is paying for my time to advise on this chat. All thoughts and opinions expressed will be my own.

2015 at The Stolen Colon

I’m always amazed at the end of each year as I look back and realize all that happened in the past 365 days. Obviously 2015 held even bigger changes than previous years as I announced  my pregnancy at the beginning of the year and gave birth (amid some ostomy drama) to my son. And if that wasn’t enough, in my personal life, we settled into our new home that we moved into just before the beginning of the year, I decided to leave my full-time job in favor of working from home and getting to spend time with my kid, and celebrated 5 years of marriage to my husband.

I thought I’d take this chance to highlight some of my favorite posts from the past year. I actually had a hard time narrowing this down because there were a lot of posts that really meant a lot to me this year. It’s pretty pregnancy / baby dominated, but I’m OK with that!

2015 stolen colon year in review ostomy baby crohn's disease ileostomy ibd inflammatory bowel disease
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