Tag Archives: ulcerative colitis

IBD Awareness Week in retrospect

We just wrapped up another Inflammatory Bowel Disease Awareness Week yesterday. There are a number of different awareness days throughout the year for Crohn’s disease, ulcerative colitis and ostomies, but this past week is the official one that actually passed as a resolution in the U.S. Senate a couple of years back. And I have to say, I think the 2013 IBD Awareness Week was the strongest yet.

ask me about my crohn's disease ulcerative colitis ostomy ibd inflammatory bowel disease awareness week december 1-7 2013 stephanie hughes stolen colon blog

thegreatbowelmovement.org

I try to keep my finger on the pulse of the online IBD community and to be aware of what people are saying and what sorts of events are going on at any given time. I was really encouraged this week to see so many people speaking out, telling their stories, hosting events, changing their profile pictures in honor of spreading awareness. I mentioned a few weeks ago that activists were really coming together and I think we saw a lot of this in the past week.

There was a special edition of the IBD Round Table held in honor of the week. A fellow ostomate was featured on an episode of Tosh.0 (not specifically for Awareness Week, but it was good timing!) And I have been overwhelmed by the response received by the Huffington Post article that Rebecca Kaplan and I wrote about some of the other things that come along with IBD other than using the bathroom. Seriously, this week had some awesome awareness being done!

Being inducted into the inflammatory bowel disease club isn’t something I would wish on anybody. But since I am a part of it, I have to say that I have never been more proud to belong to this community of people. You all amaze and inspire me every day. You remind me why I started The Stolen Colon last year and what I hope to be able to accomplish with it in the future. 

But what I hope most of all is to see IBD Awareness Week continue. And I realize that keeping going at the same pace that we have over the past week isn’t plausible day after day, week after week (advocacy can take a lot out of you!), but we can continue to keep the passion alive and continue to speak out about it. I look forward to many more acts of advocacy with all of you as we continue to spread awareness and push for a cure for Crohn’s disease and ulcerative colitis.

IBD Awareness Week giveaway winner

And the winner is giveaway prize blog stephanie hughes stolen colon crohn's colitis ostomyChrystal Shofroth!!

What Chrystal listed as the thing she wishes others knew about IBD I think rings true with many of us: “I wish others understood the seriousness of IBD complications and didn’t just judge us.”

Chrystal, I hope you wear your IBD awareness shirt and intestine socks proudly! And hopefully you can find some healthy and yummy new recipes to try. Send me an email at stephanie@stolencolon.com and let me know which “Ask Me” shirt you would like and where I can ship it to.

Thank you all so much for your comments taking part in my first giveaway. Keep spreading awareness!

And thank you again to The Great Bowel Movement. Check back on Monday for the next prize package!

Here are some other great comments you guys left:

“That IBD isn’t just a pooing disease! I wish they would understand it affects everything about me..my physical and mental health, my family, my friends and everything I’ve ever dreamed for myself!” – Jo Jo

“That IBD is life changing, but not necessarily for the worst. That it doesn’t just affect your intestines and that nobody is going to react to this disease in the same way!!!” – Dezaray

“I have learned that the IBD community includes some of the strongest, bravest, and most sincere people I’ve ever known, and that they truly are warriors!” – Christy

Inflammatory Bowel Disease: by the numbers

IBD Awareness Week

ibd inflammatory bowel disease awareness week crohn's disease ulcerative colitis ostomy stephanie hughes stolen colon blog

1,400,000: Americans living with IBD

70,000: New cases of IBD diagnosed in the U.S. each year

50,000: Children in the U.S. diagnosed with IBD

1932: Year Dr. Burrill B. Crohn first described the disease that would become known as Crohn’s disease

5: Types of Crohn’s disease (Ileocolitis, Ileitis, Gastroduodenal Crohn’s disease, Jejunoileitis, Crohn’s colitis – Here’s some more info on this)

70%: People with Crohn’s disease who will eventually require surgery

20%: People with ulcerative colitis who will also have a close relative with the disease

750,000: Annual physician visits by IBD patients

100,000: Hospitalizations every year of IBD patients

119,000: Patients on disability a year due to IBD

30%: Patients who have surgery for Crohn’s disease and will experience recurrence of their symptoms within three years (increases to 60% within 10 years)

90%: Ulcerative colitis patients who will have at least one relapse of active symptoms within 25 years of diagnosis

50%: Crohn’s disease patients who will experience complications within digestive tract (i.e. stricture) within 20 years of diagnosis

3,100,000: Approximate work-loss days per year in the U.S. due to IBD

$2,200,000,000: Annual direct / indirect cost of IBD in the U.S.

$8,265: Mean annual direct costs for Crohn’s disease per patient

$5,066: Mean annual direct costs for ulcerative colitis per patient

0: Cures for Crohn’s disease and ulcerative colitis*

*I realize that some specialists will say that removing the colon is a cure for ulcerative colitis, but I don’t think any disease that often still manifests in other ways after an organ has been removed should be considered cured. Just my opinion.

The first Stolen Colon Giveaway!

Holiday Giveaway #1

UPDATE: Winner announced!

I may be a little too excited about this, but I have been wanting to do a giveaway for a long time! So I figure, what better way to celebrate the holidays than by sharing some fun prizes with all of you! This will be the first of three giveaways this month. Each Monday, I will post that week’s prize and the entry instructions and then I’ll announce the winners on Friday. 

For the first giveaway, in honor of it being IBD Awareness Week, I have put together a little Crohn’s disease / ulcerative colitis gift set.

stolen colon giveaway contest prize holidays stephanie hughes crohn's colitis ostomy blog great bowel movement ibd healing socks intestines

Continue reading