Tag Archives: work

A day in the life of an ostomate

5:00 a.m.: Wake up to very full bag. Hold it underneath for support to go to the bathroom and empty. (Empty #1)

5:10 a.m.: Bible time.

5:40 a.m.: Spend some time blogging. Drink 1/2 liter of water.

6:15 a.m.: Bag is ready for another empty, but I decide to wait until I’m closer to leaving for work.

6:45 a.m.: Empty bag before heading to work. (Empty #2)

The Stolen Colon ostomy ileostomy urostomy colostomy Crohn's disease ulcerative colitis inflammatory bowel disease ibd colon stephanie hughes blog work day in the life typical normal day ostomate7:30 a.m.: Arrive at work and finish liter of water.

7:40 a.m.: Have oatmeal and coffee as I start work.

7:45-10:20 a.m.: Run to the bathroom 3 times to pee.

10:25 a.m.: Notice bag filling up again.

11:20 a.m.: Go to bathroom to pee (again) so decide to empty bag while I’m there. (Empty #3)
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Out of the Bag: Working

stephanie hughes out of the bag colostomy ileostomy crohn's disease ulcerative colitis inflammatory bowel disease ibd ostomy blog stolen colon

I mentioned last week that I just started a new job. I am right at three weeks into it and it has made me think about taking your ostomy with you to work. It’s a big deal.

I have had three different jobs since getting an ostomy. I had quit my job before going in for my surgery, so I didn’t have a timeline that I had to stick to in order to get better and get back to work. About five weeks after my surgery, I started to look for a job again. I knew I wasn’t quite ready to get back to work, but I figured I should go ahead and start the process since jobs don’t usually just fall into your lap these days. I ended up taking a nanny job for a 4-year-old and a 2-year-old which I started right about two months after my surgery. It was a good job to start the transition, because I had a lot of flexibility. There were only two real issues I had, which were back-to-back days where I had a leak. At the time, I hadn’t thought about bringing my supplies with me and I had to go home both days. (Why I didn’t think about that after the first day, I’ll never know.) Fortunately, the first day the kids’ grandparents were in town, so they stayed with the kids and I ran home, just saying I had a small emergency that I needed to take care of. The second day, I only had the youngest with me, so she took the trip over to my house while I fixed it up. I never even mentioned my ostomy to my employers at first, but I eventually told them just in conversation, which came about somewhat naturally since they were both doctors.

Since then, I have had two more corporate jobs. Both of them I have been somewhat open about having Crohn’s and an ostomy. I had to at my first job because I was out for several weeks having surgery and I explained a little about what I was having done, but I kept it in our section of the office. I never felt that anyone treated me differently because of it.

arca tech systems job work career corporation stephanie hughes stolen colon crohn's osotmy colitis blogOnce I started applying for other jobs, I found that I had to talk about it in some capacity. As I would go into interviews, I would be asked about my somewhat sporadic work history over the past two years. I would tell them, in an effort to be honest, they I had dealt with some health issues that lead me to quit my job and I eventually had to have surgery, but I am doing great and back to 100%. So while I may not have explicitly said that it was due to Crohn’s disease and that I had an ileostomy, I think it was pretty obvious because most of my volunteer experience is with CCFA and the Ostomy Association.

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Workin’ hard for the money

Yesterday was three weeks to the day from my surgery. As I’ve mentioned before, I’ve been feeling good and ready to get on with my life, so I decided it was time to head back to work. It’s the first time I’ve been back since my half-marathon since I took off for Virginia and immediately went on to surgery the day after getting back home.

work job desk view computer stephanie hughes stolen colon ostomy crohns blogAnd so far it has been going OK, but I can definitely tell that I’m not back to 100%. Thankfully, I do have some flexibility with my hours and schedule, so it has made it easier knowing that I don’t have to jump in full force. But at the same time, I have a difficult time taking things easy in the first place. Plus, from a financial standpoint, I’ve been out of work for weeks and could use the hours.

I have made it through the past two days working a typical eight-hour day. I’m glad to work just two miles from my house, so I have the opportunity to go home for about an hour for lunch. That gives me a great opportunity to relax for a few minutes and unplug from the work day. I have noticed that about 2:00 I start getting pretty tired. Even the people I work with say they noticed me getting quiet around that time.

For now I’m basically playing it by ear. I’d like to be able to keep up the full days, but we’ll see if I’m still saying that by the end of the week. I know that I’m not going to be much use after work. The past two days all I have done is stick a frozen meal in the oven and sit on the couch watching TV. Even then, waking up this morning was really hard. I think I hit snooze for about an hour.

I have discovered that these few weeks after surgery can be some of the most difficult. By this point, I feel good and I feel like I should be able to do all of the things that I normally do. But when I try to do so, I find that I tire easily and just don’t have the stamina to do it all. I guess you just don’t realize all of the energy that goes into healing your body. My surgeon told me it would be a four-week recovery, but it would take a few more after that for all of the wounds to heal. So it may be a couple of weeks until I’m much fun again.