Out of the Bag: What to wear with an ostomy

stephanie hughes out of the bag colostomy ileostomy crohn's disease ulcerative colitis inflammatory bowel disease ibd ostomy blog stolen colon

For me, one of the scariest parts about having my colon removed and getting an ostomy was thinking that I would never feel comfortable in my own skin again. I was afraid I would no longer feel like myself as I would be stuck wearing oversized and unattractive clothes. I’m so thankful I was wrong.

What has your experience been? Have you learned any tips for dressing with an ostomy? Any clothes you find work well? Or ones that don’t?

29 thoughts on “Out of the Bag: What to wear with an ostomy

  1. Delys

    I always wear a high waisted pretty underwear, putting the ostomy between it and my bikini undies underneath . It makes me feel better about it all. I don’t like it dangling. And, it hides the circle of the ostomy flange well. I always wear high-waisted pants, form fitting . White pants without pockets doesn’t work usually. Stephanie , I don’t know how you wear low-waisted pants without the top of the bag bulging. I’m really quite comfortable in form fitting clothes. I forget I have the ostomy, unlike constantly having the feeling of needing a restroom before.

    Reply
    1. Deborah G Hining

      Hi Stephanie, it’s so good to see you on fb and read your blogs now and then. You are so perfect for being a spokesperson for people with IBD–beautiful, confident, articulate, caring, inspirational. I wouldn’t be surprised if you end up being a real star. Every time I come across anyone with bowel issues, I refer them to your blog. I am very proud of you!
      Deborah

      Reply
  2. Eric

    Terrific advice….but…I’m a guy, dresses, except on Halloween, are out of the question! Lol! Thanks for the maternity belt tip, up until now I’ve been using my old cycling spandex with the legs cut off. I do have one problem and need your advice (all of you). My stoma is right on my belt line, so it’s either hike up my pants like Pee Wee Herman, or put them under it, exposing a little too much. Any tips or products that you know that could let me wear normal pants again without blocking the flow of my stoma? Since I got my ileostomy April 2013, I’ve wore nothing but elastic waist track pants and shorts. I miss my jeans, but the one and only time I tried, they restricted the flow and I ended up with a burst bag, I’m the middle of a very busy shopping mall no less. To be honest, I really didn’t want my ileo, over the past 25 years I’ve gone from a toxic mega-colon (flat lined for 2 minutes too!), to a temp loop ileo, to a J pouch, to a K pouch (but the nipple valve failed), to an end ileo….and hopefully, back to a K pouch in the near future, but until then, I’d love to be able to wear normal clothes again! Any and all tips/advice would be greatly appreciated! 🙂

    Reply
    1. Andrew

      Hey Eric, from one guy to another I think I can help.

      I feel the same way when it comes to my ileo. There’s no way I’m hiking my pants all the way up to cover my stoma and look like Urkel. For a while, I would use an ACE bandage to wrap around my stoma and just tuck the rest of the bag into my pants. For this, I didn’t compromise my belt line and wore my shorts/jeans/pants as I normally would. The only downside is it means you have to empty more. While in the hospital, I did some research on a product called the Stealth Belt. You wear your bag sideways (with the opening going towards the right). It makes it so you can wear pants and shorts without having to tuck anything in. It’s got a pouch where you hide your bag with a zipper on the bottom for you to open up and empty the bag. It’s also adjustable via velcro, so you can change how snug the belt is on your body. For example, while working out I tighten the belt up to have support, while resting/sleeping I loosen the belt so I feel relaxed. I don’t think I would know what to do if I didn’t have my stealth belt.

      Reply
      1. Lee

        Hi , Eric. I’m having the same problem you have. Ostomy is on my belt line. I don’t wear jeans and unfortunately I wear sweat pants like urkel and big shirts. I guess the stealth belt is a good idea but also $100.00 . Been out of work since Sept 1.

        Reply
        1. Tony

          Hey guys,
          I had an il o waybup there and the same issues with wearing jeans. So when I learnt I had to go get a permanent colostomy, I did two things: a Laser removed the gear in the affected region, so stopped the hair growing within the wafer fabric and the other thing I did is to get the ost nurse to locate on an area below the waist line where I use my jeans, she looked at the muscles and all that stuff and mover it up one cm from where I had marked it and still worked out good I can wear jeans now Levi’s 501 n 515 which are kind of low waist and am very happy. So if there’s any one out there on their way to get a bag, there you go.

          Cheers

          Tony

          Reply
    2. Tony

      Hello Erik, it’s been 2 years since you posted so I’m wondering if you’ll even read this, but…

      I had colorectal cancer and got J pouch (they cut the tumor end reconnected the vowel in a J fashion). but is is not working very well, aand it created a bit of a fistulation process bla bla bla with incontinence problems; doctor offered me that I could have an ostomy and get rid of my problems, and I have been researching about K-pouches, colostomy and so on, could you elaborate a bit on how you K- pouch was? and what took you from J-pouch to K-pouch?

      Cheers

      Tony

      Reply
  3. Kim

    I just found your blog a week ago and I love it! Thank you so much for taking the time to write it and do the videos, it means so much to me as a new ostomate 🙂

    Reply
  4. Renee

    This was such an amazing video! I have Crohn’s disease and currently in the hospital. I’m 24 years old and have been doing research. I’ve also been feeling and asking myself….” What am I going to wear!?” This video really helped me…. I see myself needing surgery in the next few days. Thank you for sharing!

    Reply
  5. Leslie Lafollette

    Great to know that people have somewhere to go for tips and suggestions. I didn’t have this when I got my Ostomy 15 years ago. I have always used a girdle, or Spanx as it is called now, to secure my Ostomy with skirts or dresses. It keeps it close to my body and when it starts to fill, I can feel it and can address it sooner. I like the idea of the maternity band though. I will have to get one and try it. Thanks for sharing your experiences!

    Reply
    1. Stephanie Hughes Post author

      Thank you, Leslie. And even just 2 1/2 years ago when I got my ostomy and started this blog, there really wasn’t much out there. It’s been pretty cool to see so many more people sharing their stories.

      Reply
  6. Avi

    Just came across your video, thank you Stephanie!!
    I’m new to the ostomy situation and was wondering as to how to dress now, how to shower, etc..your posts are terrific.
    Please keep,then coming! Have so many questions as a beginner, but my mIn one is nutrition and hydration, I think I have the nutrition part figured out, but need help with hydration. I was recommended G2 Gatorade, after drinking it at hospital, I can’t stand it, is there any electrolyte packets I could put in my smart water?
    Appreciate your advice!!
    Avi

    Reply
  7. monic

    Hi. I had surgery a month ago. I find it hard to find clothes to wear except leggings, my ostomy is really low but not low enough to pull pants over it.
    Anyway I wondered do you fold your bag in half when you put the maternity wrap over it? I still can’t figure out how to hide the bag with out wearing long oversized sweaters.

    Reply
    1. Stephanie Hughes Post author

      Hi, Monic, I do fold the bag a little. I usually pull the wrap down to be about even with the top of my bag, then I fold under the bottom and some of the bag with it. Then, my pant waist is about half-way up the wrap. If the bag is folded, you do have to pay a little more attention and empty a little more often, but it’s never been much of a burden for me.

      Reply
  8. sugarbear1611

    You have no idea how much this has helped me! My home nurse told me wraps cause leaks & I can’t wear my pouch inside my skirts b/c of leaks. It has been such a challenge I don’t even want to go out b/c I can’t hide it. Thank you for posting this.

    Reply
  9. Jerica

    so I stumbled upon this site today, and so far its been helpful. I’ve had my ostmy bag since May, 5 months now, and i tend to use my regular shirts which have been a bit big on me and pants that sit at my waist, so my bag just kinda hangs there. And i never thought of using a band because i thought it would cause it to leak if it filled up. but i guess i should try it and find out. But thanks for giving me the idea.

    Reply
  10. Stoma Brothers

    I wear a trendy top from bed bath and beyond at all times. I install bag horizontally and pointing to my right hand side. It holds the bag securely until it’s time to empty content. Of course, I wear a shirt over top during the day. #stomabrothers

    Reply
  11. Sara

    My little sister is 11 and got an ostomy yesterday. I am so glad that I came across this video so that she can see that she can still dress like a normal little girl and not need to feel self conscious or embarrassed.

    Reply
  12. Deanna

    Hey there! I got my colostomy Jan 2016 and yes it is a change but I do feel a lot better. We will be looking at reversal in a few weeks if all test comes back good. Alot of changes to get adjusted to, foods to eat, not to eat but that got easier. Then the issues of what clothes to wear. Yes, leggings it was. Then that got old I wanted to wear my jeans, capris to look normal in clothing again, not oversized anything. To my surprise I ordered some maternity capris and YES work like a champ – so at 48 yrs old would have never thought I would be in maternity clothes again, so never say never just for a different reason.

    Reply
  13. Tony

    Hello Erik, it’s been 2 years since you posted so I’m wondering if you’ll even read this, but…

    I had colorectal cancer and got J pouch (they cut the tumor end reconnected the vowel in a J fashion). but is is not working very well, aand it created a bit of a fistulation process bla bla bla with incontinence problems; doctor offered me that I could have an ostomy and get rid of my problems, and I have been researching about K-pouches, colostomy and so on, could you elaborate a bit on how you K- pouch was? and what took you from J-pouch to K-pouch?

    Cheers

    Tony

    Reply
  14. Wendy Nowatzke

    I can’t find any clothes to wear, my iilostomy bludges out . I’m tired of never being able to look nice again.

    Reply
  15. Freida

    My mother recently had her colon removed and has an ileostomy. She wears pajamas mostly and I was looking for something made for this condition. Why isn’t there gowns or pajamas that just have a snap open and closed area for the ileostomy? Seems that someone would make something like that.

    Reply
  16. tom thompson

    69 yrs old. got my ileostomy when i was 14. still trying to get used to it. just found this site. have a large protruding stoma. been wearing wearing same pouch combo for many yrs. hard for me to try something new. enjoy this site and will continue to read for more info. thanks for postings.

    Reply

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