5:00 a.m.: Wake up to very full bag. Hold it underneath for support to go to the bathroom and empty. (Empty #1)
5:10 a.m.: Bible time.
5:40 a.m.: Spend some time blogging. Drink 1/2 liter of water.
6:15 a.m.: Bag is ready for another empty, but I decide to wait until I’m closer to leaving for work.
6:45 a.m.: Empty bag before heading to work. (Empty #2)
7:40 a.m.: Have oatmeal and coffee as I start work.
7:45-10:20 a.m.: Run to the bathroom 3 times to pee.
10:25 a.m.: Notice bag filling up again.
11:20 a.m.: Go to bathroom to pee (again) so decide to empty bag while I’m there. (Empty #3)
12:00 p.m.: Finish second liter of water.
12:20 p.m.: Eat lunch. (Today it’s a burger, Sun Chips and a half-liter of DripDrop… Not my healthiest example.)
1:15 p.m.: Notice bag filling up again, but not ready to empty yet.
2:15 p.m.: Bag starts getting heavy. Go to bathroom to empty. (Empty #4)
2:20-4:00 p.m.: Boring work stuff.
4:00 p.m.: Drive home.
5:10 p.m.: Finish third liter of water.
5:30 p.m.: Eat dinner. (Homemade chicken burritos.)
7:30 p.m.: Bag is getting full again, but I wait to empty.
9:05 p.m.: Final empty before going to bed. Lots of gas this time. (Darn burritos.) (Empty #5)
*This represents a fairly typical day for me as far as care for my ostomy. (Although I am definitely not always this good at drinking my goal of 3 liters of water a day… I must’ve been extra motivated since I knew I was tracking myself that day!) Most often, I empty twice in the morning, twice at work, and twice once I’m back home in the evening. Of course, there are the days when I have to change the bag or something like that which adds another level of care. And this is specifically dealing with an ileostomy, so I know that care for a colostomy or urostomy would be different. I know this is not necessarily a “typical” day for everyone, since all ostomies act differently. Early on after my surgery I would have to get up during the night to empty, but I don’t usually have to do that any more.
My point here is to show that having an ostomy does not have to rule your life. You may still go to the bathroom more often than the average person, but for Crohn’s disease and ulcerative colitis patients, I promise you will spend a lot less time in there than you would have before the surgery!