My ostomy and me: 1 year

This is an important day for me. It is a day that I will always remember as one that changed my life. On this very day, just one year ago, I was waking up in a hospital bed after a 4 hour surgery with a new addition on (…and subtraction from) my body: my ostomy.

In honor of such a big day in my life, I took the opportunity to take today off from work, so I’ve enjoyed a fairly laid back day. I did start today back at UNC Hospital for my last appointment before my surgery last month just to go over all of the details and sign all of the paperwork (but more on that later.) I then treated myself to a little shopping and then a little errand running. Now I’m back home watching TV and I even got in a quick nap!

It’s been nice to have the day to myself and to have some time to think. I’ve been going through some of my posts from last year, just before and after my surgery, and it’s amazing to see the change in me. I was so scared at that time. I didn’t know what to expect from having an ostomy, I wasn’t sure how to move forward with my life. But I see now how it has all come together.

stephanie hughes ileostomy ostomy anniversary one year crohn's disease blog stolen colonI wouldn’t give up this year for anything. I have learned so much about myself and finally remember what it’s like to really feel good. I am definitely not saying that it’s been easy, but I can confidently say that this was the right decision to get my ileostomy and I would make it over and over again. Being a part of this online ostomy & Crohn’s community has been a blessing, as well, and I look forward to continuing to build relationships with many others out there.

Just one year ago, the idea of having a second surgery to make it permanent would have been a difficult idea to accept. Now that I’ve had a year to realize this was the best decision for me and I see that it won’t make any difference if it’s permanent, it doesn’t seem so scary.

9 thoughts on “My ostomy and me: 1 year

  1. Molly

    Everyone is so proud of you. You have been through so much at such a young age. You are truly an awesome survivor!! Good wishes for another great year!

    Molly B

    Reply
  2. Sara

    Thanks for sharing Stephanie! Glad to see how well you’re doing. I’m mentally preparing for one so bloggers like you have been a huge source of support. Big hug..

    Reply
  3. Nancy Petrongelli

    What an inspiration you are! May I ask someaquestions? My son Alex was 9 when he was diagnosed. He’s 11 now and takes a methotrexate shot once a week. What sort of progression did your disease take? How long have you been diagnosed? How are you feeling now? I appreciate any information you can offer.You’re so beautiful and look so happy!

    Reply
    1. Stephanie Hughes Post author

      Hi Nancy, I’m sorry to hear about your son. I was 13 when I was diagnosed so I have an idea of what that was like. It was 13 years later when I got my ostomy and I feel great now! I have been completely off medication since then. The only complications I have had were when I was pregnant, so your done wouldn’t have to worry about that 🙂 Feel free to email me at stephanie@stolencolon.com if you want to chat some more.

      Reply
  4. John

    Hi Stephanie
    I hope you took your 2nd anniversary of and just had another relaxing day like your first. I just the other day celebrated my 2nd anniversary of my ileostomy surgery on August 14 2015. I took the day of also and just relaxed all day. I am so please I had this done it did change my life for the better.

    Reply
  5. Pingback: 5 years: The resentment anniversary? | The Stolen Colon | Living beautifully with an ostomy

Sit down, stay a while. I'd love to hear from you.