Blogs worth following

Ostomy blogs

 

The Adventures and Misadventures of Mr. Stoma
This is such a great place to go when you need to just laugh a little. The blog is written from the perspective of Mr. Stoma who gives us some insight into what it’s like to be a stoma and muses about how weird his “human” is.

 

Crohn’s Disease & Ulcerative Colitis blogs

IBD Roundtable
This is hosted by Frank Garufi, Jr. whose young son Domenic is living with Crohn’s disease. I met Frank pretty early on in my advocacy days and we got together to do my first interview. The Roundtable is hosted live on Google hangouts and often has other guest panelists (even me!)

Inflamed and Untamed
Sara, like me, was only a teenager when she was diagnosed with Crohn’s disease. She had her colon removed several years ago and now has a j-pouch. She writes to inspire others to remain positive and remember they are beautiful, even with a bowel disease. She is an incredible inspiration, in both her writing and video blogs, which you can find at Sick Girl Beauty Vlog.

Colitis Ninja
Amber has one

#PurpleProject
Kelly has had Crohn’s disease since she was a teenager, but it definitely doesn’t slow her down. In her blog, she talks about the races she is training for and has also participated in a bunch of Team Challenge races to raise money for Crohn’s disease & ulcerative colitis research!

Non-IBD blogs

The Flying Tire: I worked with Jaimie at my first news station job in Myrtle Beach. Just two months after getting married, her husband was driving on the job and a tire flew at his car – hence the title – and he was in an accident causing a spinal-cord injury and paralysis from the shoulders down. Jaimie’s blog is one of the most inspiring stories I have ever read as she and her husband adjust to this new life and find hope in the midst of tragedy.

Bluestocking Hack: The creator of this blog, Reagan, just so happens to be my very best friend in the world. She is a total literary geek and she writes poetry and poses thought-provoking questions and talks about the books and stories she’s been reading and/or writing.  She’s one of those people who inspires me to be a better person. You should definitely check her out.

5 thoughts on “Blogs worth following

  1. Elaine

    I do not Crohn’s Disease or IBD, but do suffer from severe IBS. It is so bad I have started to consider an ostomy. My doctor has said this is not something for me to consider. After reading these blogs and messages I am still thinking about it. The fecal incontinence is really pushing my thoughts in this direction. Any comments would be appreciated.

    Reply
    1. maggie black

      I have similar issues and am told the same but I also have a severe hypomotilty issue with small bowel paralysis. Quality of life stinks. With a bag and colon removed I am not sure it would be any better. That creates many new problems and does not solve the reason you have the FI.

      Reply
    2. elaine

      Boy, do I know what you are talking about!! I went to the Mayo Clinic in Jacksonville, Florida in January. For one thing they said I do not weigh enough to have an ostomy and it would create more problems. I too have IBS, but not Crohn’s or IBD. I have found an ostomy support group and they graciously accepted me into their group. We do not have the same medical concerns, but we all have suffered in some way with digestive problems

      Reply
  2. jojocrabb

    thanks for mentioning #purpleproject on here, steph. your work is amazing & you have been such a good, positive role model for all – living despite IBD or just plain living life.

    Reply

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